World of Wonder

Operation Goodbye Hemangioma

Day 41

We've seen a lot of changes in 41 days. 

C has learned to hold her head up, to grasp toys, and, just this morning, to roll over. She is teething, a constant stream of drool flowing from her mouth and a tiny fist trying desperately to provide some relief. She no longer wants to be on her back, but instead wants to sit upright any way that she can, and in true C fashion, will let you know how she feels!

Still the bright and cheery morning person, she squeals and "talks" constantly, recently adding consonant sounds to her babbling. She is wearing size 3 month clothing and has almost grown out of her footed pajamas with those long legs of hers. She smiles all the time and is wide eyed most of the day, taking in the world around her.

We've introduced Baby Einstein videos as she can finally watch them without falling asleep. She helps me turn the pages (well....sort of...) when we read books, exploring new sensations with her fingers. She would sleep straight through the night if I didn't have to wake her at 11:30 for a dose of medicine. At nearly four months old, she is growing up so very fast.

Among all these changes, we've watched the hemangioma shrink day by day. The dose of propranalol is still 0.4 mL three times a day, but will most likely increase after her appointment next week. The changes have been slow, but visible, and there isn't a day where we regret going through with this treatment:

Day 1: Day 39 profile: Day 41

The progress has definitely slowed, but we can still see that the bump is much smoother and smaller now and the coloring overall is beginning to gray, which Dr. Theos told us was the first sign of the medication working. There seems to be less pressure on her left eye and eyebrow when she smiles and this will hopefully continue to get better over time. Hopefully, C's weight gain will allow us to increase her dosage over the next couple weeks. Once the dose is 0.8 mL three times a day, the changes should be much faster. Regardless, we are so happy to watch this treatment work before our eyes and are so very grateful for such a great doctor so close to home.

We will know more after our appointment next week. Until then, we will continue to watch her grow and change before our eyes and love every single minute of it.